Category Archives: Diagnosis

BAD THERAPY? A DISGRUNTLED EX-PSYCHOTHERAPY CLIENT SPEAKS HER PIECE

Reblogged from Disequilibrium1's Blog:

In blogs and book reviews, I see reference by therapy professionals to the “disgruntled ex-client.”  I assume this label is pejorative and the classification perhaps is to warn therapists to create a strong filter when one hovers nearby.

So here’s my warning label: I’m a disgruntled ex-client.  My therapy mostly was harmful.   Before I’m tuned out, I hope some therapists may consider listening as I speak my piece, so they might find fewer like me at large.

Read more… 1,834 more words

Valuable perspective from the client's side. Can't agree with everything that's written here, but I count description of six significant ethics violation. Wish Disequilibrium1 knew how many ethical, competent therapists already follow her seven suggestions.

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Revolution: NIMH turns away from the DSM

dr-insel-2011

Thomas R. Insel, MD, director of the NIMH

Two weeks ago, National Institute of Mental Health director Thomas R. Insel, MD announced a revolution. The world’s largest mental-health research organization will no longer fund studies based solely on Diagnostic & Statistical Manual (DSM) diagnoses.  If, “NIMH will be re-orienting its research away from DSM categories,” sounds less subversive than, “Give me liberty or give me death,” pay attention.  The whole system of diagnosis may be upended.

The Golden Rule: Those with the gold make the rules.

When insurers began to require a DSM diagnosis,  the American Psychiatric Association (APA) cornered the market in mental health nosology. No other U.S. group has had the money, staff and interest to create a competing system.  Ambitious alternatives such as the Psychodynamic Diagnostic Manual settled for expanding on the existing design. The APA, which has earned an estimated 100 million dollars from the DSM, flaunts their monopoly in  DSM-5′s $133 cover price. By comparison, Thomas Pynchon’s “Against the Day“  is 112 pages longer,  1/10th the cost and exponentially better-written.

Forbes’s Matthew Herper believes DSM’s diagnostic weaknesses have led to failed drug trials, and so is one reason for Big Pharma’s shift from developing new psychiatric medications.  The NIMH’s 2013 budget totals nearly 1.5 billion dollars. Insel’s ready to spend some of that towards more valid diagnoses.

Reliability vs. Validity.

The last time the DSM was reformed, rather than revised, Robert Spitzer was chair and reliability was weak. Psychiatrists could only agree on a diagnosis  20% to 40% of the time.  Spitzer’s goal was for different assessors to reach the same diagnosis from the same facts as consistently as possible. He chaired contentious meetings of obstinate psychiatrists, and condensed the best opinions down to abstraction-free criteria of what a clinician could see and a client could report.  Reliability improved – some.

One offers valid insights into the human condition. The other is required by insurance companies.

One offers valid insights into the human condition.
The other is required by insurance companies.

Validity improved less. As the book defines Antisocial Personality Disorder, only three of seven criteria must be met for a diagnosis. It’s hard to argue this diagnosis describes an actual mental health disorder when it could fit two bad actors with nothing in common.   As Maria Konnikova points out, Spitzer’s subjective-observation-and report-only approach meant the APA bet everything on the least empirical source of data available.   While other fields of medicine have developed biological, physiological and genetic studies of physical diseases, the APA hasn’t kept up. Noted DSM critic Gary Greenberg tells the tale of how the DSM-5 committee rejected a proposed reinstatement of melancholia, in part because there was biochemical evidence it should be defined separately from depression.

RDoC: a system to break free of systems.

Also subversive and clever; an Omaha, NE punk band have named themselves "DSM-5".

Also subversive and clever; an Omaha, NE punk band have named themselves “DSM-5″.

To NIMH and many others,  the validity issue makes controversies over DSM-5′s changes as superficial and irrelevant as complaints about Bernie Madoff’s office décor.  In 2011, Insel announced the Research Domain Criteria (RDoC) project. This new approach defines disorders on multiple levels of data. Constructs such as negative affect, positive affect, cognitive processing and social-process systems would be tracked across dimensions of behavior, self-report, cells, genes and physiology.  Clients’ symptoms would be placed along a range from normal to abnormal, instead of being forced into discrete categories. If new influences on emotions and behavior are discovered, new layers of information can be incorporated into the model. Research projects involving DSM diagnoses will still be accepted, but researchers will be expected to think in broader terms than subjective assessment of symptom clusters.

Insel denies that RDoC is meant to replace the DSM-5. The NIMH is already developing “walk-across” list to align DSM and RDoC diagnoses. Given that RDoC 1.0 is probably years from public release, even critics as sharp-tongued as Allen Frances concur that the DSM is the best system of diagnosis clinicians have now.  None of that changes the existential threat to the APA’s subjective-observation-only model. If RDoC rebuilds diagnosis’ operating system and obtains  more-valid results, will insurers’ money stay with the DSM?

 

@ 2013 Jonathan Miller All Rights Reserved

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Hippocrates on Social Anxiety Disorder

Hippocrates of Kos (c. 460 BCE – c. 370 BCE)

Hippocrates of Kos (c. 460 BCE – c. 370 BCE)

I’m catching on that many Anxiety Disorder NOS diagnoses may be Social Phobia. To quote the Father of Medicine:

“(this man) … through bashfulness, suspicion, and timorousness, will not be seen abroad; loves darkness as life and cannot endure the light or to sit in lightsome places; his hat still in his eyes, he will neither see, nor be seen by his good will. He dare not come in company for fear he should be misused, disgraced, overshoot himself in gesture or speeches, or be sick; he thinks every man observes him.”

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Sleep Apnea: Depression’s subtle sidekick.

A client presents with irritability, drowsiness, lack of energy,  and hypersomnia. You’d suspect depression, possibly Bipolar Disorder, and you’d likely be correct. It might also be something more.

Just over a year ago, Texas governor Rick Perry was hailed as the Republican party’s best choice to win the White House in 2012.   Poor debate performances sank his candidacy, most notably when he couldn’t remember a third government department he planned to eliminate.  In his new book “Oops“,  Texas Tribune correspondent Jay Root claims Perry’s lapses were due to a sleep disorder:

“…by early October, days after the Florida fiasco, (Perry) had urgently consulted sleep specialists. After conducting overnight tests on Perry, they produced a rather startling diagnosis: He had sleep apnea, and it had gone undetected for years, probably decades.”

Rick Perry’s doctors: “Oops.”

Sleep apnea causes sleepers to stop breathing. These pauses can last several minutes and occur  thirty times or more per hour. Unknowingly, sufferers’ wake dozens of times per night. This sleep disruption can slip past diagnosticians because it shares so many symptoms with depression. When a client presents with  fatigue, forgetfulness and lack of motivation, a family doctor might refer them to counseling instead of a sleep study.  The assessing therapist might ask the person if they ever wake up gasping for air. More likely, they’ll focus on all of the mental health questions we have to squeeze into an assessment session.

Along with serious physical risks, sleep apnea can cause depression and memory troubles, via sleep deprivation.With depressed clients who report fatigue, but no trouble sleeping, it’s smart to ask about the following:

  • Morning headaches
  • Memory or learning problems and not being able to concentrate
  • Waking up frequently to urinate
  • Dry mouth or sore throat when you wake up
  • Snoring
  • Reports from bedmates that you stop breathing in the night.

Two years ago, I started to encourage clients to report such symptoms to their family doctors. An impressive percentage have returned with a positive diagnosis for sleep apnea. So far, each who pursued treatment have reported improved mood and energy. Each was genuinely depressed; disrupted sleep made each’s depression significantly worse. With sleep apnea, sleep deprivation can hamper therapy even when a client believes they sleep all too well.

 

@ 2012 Jonathan Miller All Rights Reserved

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Can Trauma Make Us Stronger?

Stephen Joseph, PhD, professor of psychology at University of Nottingham, UK. (Photo credit: Maria Tanner at Lace Market Photography)

Great – another f***ing growth opportunity,” reads the classic bumper sticker. “Classic” here means, “old”, especially given that ‘personal growth’ seems as outdated as Esalen, hot tubs and encounter sessions. In his new book, “What Doesn’t Kill Us”, Stephen Joseph, PhD pries the concept free from associations with self-indulgence by linking it to Grandpa’s good, old-fashioned ‘character building’ – finding strength through suffering.

In 1990, Joseph conducted three-year follow-up interviews with survivors of the Herald of Free Enterprise sinking. Those who lived through the tragedy reported all of the pain, guilt and sleeplessness researchers expected. Yet, surprisingly, 43% also made comments like, “I live everyday to the fullest now,” and “I am more determined to succeed in life now.” Joseph, professor of psychology at the University of Nottingham, UK, used these findings to develop his Changes in Outlook Questionaire (CiOQ), and found it repeatedly confirmed such signs of personal growth in hundreds of trauma survivors.   Like Viktor Frankl, Joseph “… saw two sides of suffering, noting that while there might be nothing inherently good in misfortune, it might be possible to extract something good out of misfortune.” He argues against Freud’s view that therapy’s role is to get clients back to common unhappiness. Rather, the therapist’s job should be to help people lift themselves above their pre-trauma level of functioning – to grow.

"... 'terror'... 'torment'... 'tragedy' .... here it is, 'trauma'."

Every trauma survivor seeks information. They’re filled with questions such as, “ What happened? Why can’t I put it behind me? Why did this have to happen at all?” Joseph presents PTSD as an information-processing problem. To be traumatized is to be blasted with unbearable knowledge at an intolerable volume.  So much, so fast, creates an overload that destroys neurons in the hippocampus and hampers one’s ability to process the memory. These ‘uncategorizable’ recollections drift about the mind in the form of flashbacks and nightmares, like so many piles of paperwork on a desk. To file such memories away properly, the survivor’s understanding of the world must grow. A new file folder with a new category, (one that makes sense of the memory), must be labeled.  Unanswerable “Why me?” questions aren’t resistance or self-pity – they are the start of the search for meaning. 

None of Joseph’s ideas fit on a bumper sticker, and all are ripe for misinterpretation. One can sense his desire for a rubber stamp reading, “OF COURSE”.  Of course trauma survivors suffer, he says. Of course no one would choose trauma for the benefits of post-traumatic growth. Of coursePositive Psychology” doesn’t mean clients censor their pain with smiley-face stickers. He makes it clear that growth is not a guaranteed result of trauma, and lack of growth is not evidence of poor character. First, Ryan and Deci’s basic needs (such as acceptance and belonging) must be met. A client must choose to engage in the growth process before that process can begin. When a person is traumatized enough to meet criteria for post-traumatic stress disorder, growth won’t happen until those symptoms ease in treatment. A more specific, less marketable title might have been, “What Doesn’t Kill Us or Give Us PTSD.”

The last issue is particularly relevant, given Salon.com’s try at shoehorning the author’s ideas into an “over-diagnosis” narrative.  Joseph straddles the diagnosis debate. He observes that a PTSD diagnosis validates a client’s story. It’s undoubtedly a good thing  survivors have been moved from the file marked, “Malingering coward,” into the one labeled, “Someone with an understandable, treatable illness who is deserving of our compassion.” He’s troubled, though, that the same redefinition moves trauma from the, “I will survive this and grow stronger,” category  to the, “This is something the doctor needs to fix,” file.  In his view, our current understanding can file trauma survival under stiff-lipped perseverance or a treatable illness, but not the process of becoming someone new.

Friedrich Wilhelm Nietzsche (1844-1900). Personal-growth pioneer - not actually to blame for WWII.

Perhaps this critique of the medical model explains why the book is weakest when it addresses treatments for post-traumatic symptoms. It’s clear Joseph’s focus is to break up our thinking about trauma. He encourages therapists to speak in the disease model’s terms long enough to engage the client in the process of growth, but rushes past descriptions of how specific symptoms can be eased so growth can begin. With all of the book’s valuable advice for clients on coping with stress and finding professional help, one wishes the author spent more time on why, how, and how well different treatments work.

In “What Doesn’t Kill Us”, the author wire-walks his way between the fact-free fluff of self-help and the rigid, symptom-focused empiricism of insurance panels, to show how Nietzche‘s maxim can apply to leading a fulfilling life, not just survival in a vicious world. What doesn’t kill us provides the opportunity to nurture changes in our thoughts, behaviors and understanding of how life works. We can grow enough from adversity that the answer to, “Why did this have to happen?” becomes, “So I could be a stronger, more compassionate, more fully-alive person.”

(The New York Times has an excellent article about post-traumatic growth among members of the U.S. military here.)

@ 2012 Jonathan Miller All Rights Reserved

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PTSD is Overdiagnosed Unless … Part 2

I’m reading ”What Doesn’t Kill Us“, by Stephen Joseph, mentioned in this earlier post.  No mention of over-diagnosis yet. Reader Christy wrote in to say:

Same issue at one of my old jobs. Clinicians diagnosed all the kids with PTSD because they were abused. I remember sitting in group supervision explaining why experiencing trauma does not necessarily mean that one will develop PTSD.

Grieving? Clearly. Traumatized? Possibly. Post-Traumatic Stress Disorder? The odds are 2-to-1 against it.

Unfortunately, I’ve heard similar stories at my community mental-health job. Allen Frances, MD, psychiatrist and chair of the chair of the DSM-IV Task Force, suggests that PTSD is both the most over- and under-diagnosed disorder around.

The Other Side of Sadness is an excellent book on grief and resilience. In it, author George A. Bonanno describes New Yorkers’ surprisingly low rates of post-traumatic symptoms  after the 9-11-01 attacks. He writes of how he and the original researchers sifted the data [i] to focus on the people closest to the tragedy - those who witnessed the WTC towers fall with loved ones inside:

“The people who experienced this kind of bereavement had the greatest proportion of severe trauma reactions. Just under one-third met the criteria for PTSD. That is about the highest proportion of PTSD that any event will produce. And yet just as many people who had experienced this same horror — one in three — had no trauma reaction at all.”

Exposure to trauma is not the same as post-traumatic symptoms.  Post-traumatic symptoms are not the same as Post-Traumatic Stress Disorder.  These days, there’s a lot of heat on the American Psychiatric Association over the upcoming DSM-5.  Evolving criteria for diagnosing mental illness is a much less serious threat to accuracy than those who don’t or won’t take the time to use the DSM properly.

@ 2012 Jonathan Miller All Rights Reserved


[i] Bonanno, G.A., Sandro Galea, A. Bucciarelli, and D. Vlahov. 2006. “Psychological Resilience after Disaster – New York City in the Aftermath of the September 11th Terrorist Attack.” Psychological Science, 17(3): 181-186.

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Is Bipolar Disorder a Thing?

"So, am I depressed, or Bipolar, or what?

When you have to diagnose a client with lots of depressive symptoms and a few, brief manic symptoms, you can be faced with a zebra riddle: is this a mild case of bipolar disorder? Or just a depressed person who gets very, very energetic when their mood improves ?

James Phelps, MD posts to the Psychiatric Times to suggest the problem may lay in the categories themselves. In a review of studies done with different definitions of hypomania (symptoms lasting at least four days… or three… or possibly two…) Phelps found hypomanic symptoms occur at lower and lower frequencies until they vanish altogether. He suggests Bipolar Disorder isn’t a ‘thing’, like a broken arm. Rather, he proposes it is a range along a spectrum of symptom intensity, the way doctors diagnose hypertension when their patient’s blood pressure gets up around 140/90.

What to do?  Dump the existing diagnoses? Start over by rating symptoms and personality traits on empirically-based scales?  It’s true that a switch to research-based constructs would bring us all closer to the reality we can know and measure. The downside is that it would produce chaos during the conversion. To know one’s diagnosis is a fundamental client right – how long would it take to explain diagnoses like, “5-2-6-2-1-7-8″? How would we file and reference the research on extinct disorders? Where will Borderline Personality Disorder support groups meet  if we declare there’s no such thing? To overturn established systems, one has to counter massive inertia. American therapists of a certain age will remember how the U.S. didn’t convert to the metric system in the 1970s – and it had a 200-year track record.

Phelps suggests we contain the collateral damage by taking a cue from physicists. They’ve understood for years that light sometimes acts like a particle and sometimes like a wave. They’ve conducted useful research (and kept their heads from exploding) by using the most appropriate model for the problem they face.  This “complementarity” principle means we can be more empirical without bewildering clients. For research, we’d use the ‘wave’ model, where it’s understood that ‘major depression’ and ‘bipolar’ mark points on a curve measuring the length and intensity of manic symptoms. When talking to clients, we’d use the ‘particle’ model, where we’d speak as though those conditions were as different as asthma and a hangnail. Would we lose specificity? Not enough to leave our clients uninformed. After all, even if Bipolar Disorder isn’t a ‘thing’, it shouldn’t take a psychology degree to get treatment.

@ 2012 Jonathan Miller All Rights Reserved

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PTSD is overdiagnosed – unless maybe it’s not

Salon.com ran an interview with Stephen Joseph, professor of psychology, health and social care at the University of Nottingham,U.K., and author of, “What Doesn’t Kill Us: The New Psychology of Posttraumatic Growth”. The headline? “How PTSD took over America”.  The subtitle? “The diagnosis is now being applied to everything from muggings to childbirth. An expert explains why it’s bad news.”  Interviewer Alice Karekesi asks questions like, “Do you believe that PTSD is over-diagnosed?”, “Is the emotional pain overblown in such cases?” and “Are there some cultures that are more prone to post-traumatic growth?”  One quick scan and I was ready to ask Dr. Joseph blistering questions such as, “How long does a client need to suffer before they can skip the ‘growth’ and actually get some help?”

Until I re-read his answers. And noticed that Salon and Joseph were talking about different things. Joseph doesn’t claim post-traumatic stress disorder is over-diagnosed. He explains the definition of PTSD has expanded, but doesn’t argue that’s a bad thing. He notes some say the DSM over-medicalizes the human experience, but doesn’t take a stand on whether it does or not.  The only “bad news” he explains in the interview?  People who have a normal reaction to an upsetting event may believe they have PTSD.

I’ll be reading Joseph’s book in the near future. Blurbs for the book suggest it’s not about diagnosis, but the way one can grow during recovery from trauma, and emerge stronger and healthier than before. If there are meaty chapters claiming that PTSD is over-diagnosed, you’ll read the full update here.

Political observers note media coverage is often driven by pre-established narratives – storylines and stereotypes that journalists (overworked, underpaid, overstressed and under-respected, by definition) fall into. Why did Candidate X get labeled as a flip-flopper when Candidate Y changed positions, too? Because it fit a storyline, including people’s perceptions of X’s character. The narrative here seems to be that if you say you have PTSD (or any other DSM diagnosis), it’s more likely you’ve inflated mild symptoms into a mental disorder because you’re weak.

DSM-V comes out next year. Watch for more of this narrative as May, 2013 approaches.

@ 2012 Jonathan Miller All Rights Reserved

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Hypnagogia, misdiagnosis and Kermit the Frog

It’s a too-common newbie mistake: a therapist fresh out of grad school assesses a client who reports mild anxiety and maybe a little depression. Do they hear voices? Sure… every now and again. The poor client winds up misdiagnosed with Psychotic Disorder NOS, because the rookie assessor didn’t ask a crucial follow-up question: “When do you hear these voices?”

Hypnagogic  hallucinations are visual, auditory, or tactile hallucinations that occur while drifting off to sleep.  The term ‘hypnagogia’ is taken from the Greek for “inducing sleep”,  and was coined by Napoleon III’s librarian, Louis Ferdinand Alfred Maury. Bódizs, Sverteczki, et al [i] suggested that elements of REM sleep continue in the hypnagogic space between full wakefulness and true sleep. If they’re right (and follow-up EEG studies [ii] support the hypothesis), it would seem our dreams can briefly blend with our waking awareness, like a computer-generated movie monster matted in with the actors. Psychic researcher Frederic Myers noted something similar can happen when we wake, and termed this a hypnopompic state. The DSM says this part of the normal human experience, like the illusion of hearing someone call your name.  I won’t count any reports of hallucinations in bed as a sign of mental illness, even if the client insists they were wide awake at the time.

Necessary follow-up questions can fall victim to time pressures. In community mental health, the pressure can come from management less concerned about about  precise diagnosis than they are about meeting Medicaid timelines . In private practice, the pressure can come from clients impatient to move past formalities and start fixing their problems. A client’s eligibility to adopt a child or buy life insurance can hang on the question of, “Have you ever been diagnosed with…?” Misdiagnoses based on something as ordinary as hypnagogia can affect them long after their actual mental health problems are resolved.

How ordinary are hypnagogic hallucinations? Muppets have them:

Key lines come at the start of the third verse:

“Have you been half asleep, and have you heard voices?
I’ve heard them calling my name.”

@ 2011 Jonathan Miller All Rights Reserved

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